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Showing posts with the label disability

Brief Update

I've got a few new diagnoses on top of the others but we're working through it. Crohn's disease, hidradenitis suppurativa, migraines, psoriasis, and polymalgia rheumatica. I'm on a 60 day taper of steroids and an experimental dosage of Humira at 80mg per week. Will update later.

Two in one day!

So I thought I had finished my blogging for the day, but I was wrong. I need to take a moment to complain... Anyone who has a chronic illness might be able to relate to this. Or anyone who just finds that life is difficult sometimes... I was diagnosed with Crohn's disease in 2007. I displayed symptoms LONG before that, and as a child I would often sit in the bathroom floor with my head against the cold marble of the bathtub after every meal just waiting for the nausea to pass. Since my diagnosis and treatment life has been different. Sometimes it's easier, sometimes it's not. But I can never really forget that I'm living with a disease because most of my life is dictated by my symptoms. I've said this in other blog posts, but in case anyone new is reading: I have fistulizing Crohn's. I have had 2 fistulectomies to date. I am currently being treated with Cimzia. My primary symptoms (currently) are nausea, stomach cramps, joint pain, and fatigue. I am on disab...

My Life with Crohn's/Colitis

I have Crohn's/Colitis. This is a subject I haven't really taked about before but it's such a huge part of my life that I feel it's necessary to discuss it here. Maybe this will be a way to express some of my concerns and vent some frustrations while alleviating some stress. Since I was a child I've always had strange stomach aches. Every time I ate I would get nauseous almost immediately afterward. My parents thought that I was just trying to get out of doing the dishes, but that really just wasn't the case. My stomach ailments got worse when I left for college. A lot of the problems I was having I attributed to the poor quality of food on campus. The Chow Hall wasn't exactly known for it's exceptional variety of nutritious foods and I remember being notified more than once during my tenure that they had failed their health inspections. Food contamination however, wouldn't cause the fistula that had developed starting in December of 2005. After doze...