So I thought I had finished my blogging for the day, but I was wrong. I need to take a moment to complain...
Anyone who has a chronic illness might be able to relate to this. Or anyone who just finds that life is difficult sometimes...
I was diagnosed with Crohn's disease in 2007. I displayed symptoms LONG before that, and as a child I would often sit in the bathroom floor with my head against the cold marble of the bathtub after every meal just waiting for the nausea to pass. Since my diagnosis and treatment life has been different. Sometimes it's easier, sometimes it's not. But I can never really forget that I'm living with a disease because most of my life is dictated by my symptoms. I've said this in other blog posts, but in case anyone new is reading: I have fistulizing Crohn's. I have had 2 fistulectomies to date. I am currently being treated with Cimzia. My primary symptoms (currently) are nausea, stomach cramps, joint pain, and fatigue. I am on disability because I'm physically incapable of holding a job that would accomodate my illnesses and allow me to make enough money to still cover my medical bills.
Now that we're caught up on the facts...
Sometimes my mother just CANNOT seem to understand that I'm sick. I live with my parents in a loft apartment attached to their house because I can't live alone. I (like many others with chronic illnesses) just have too many issues that I can't deal with alone, so I have to live with my parents.
Last night I went to a friend's house just to hang out. Before heading to his house I took something for pain because the intestinal cramps were getting worse. When I got there we sat around, watched youtube videos, listened to some Lonely Island, and that was pretty much it. When I came home I was feeling nauseous so I took something but I couldn't sleep. I didn't fall asleep until 6 AM, and when I did finally wake up I was still having stomach cramps. When I explained this to my mom this morning she said, "Every time you go somewhere you come back sick. You must have felt fine earlier or you wouldn't have gone. Maybe you just need to stay home."
I'm just wondering how many of you have experiences like this? You have to medicate yourself in order to function but you still don't feel great. You go out because you feel like if you don't leave the house occasionally you're going to go crazy. Feeing like crap in the company of friends is sometimes less horrible than feeling like crap in an empty room.
I just don't think she understands that if I were to always stay home when I feel bad, I would NEVER leave the house. I would probably get depressed and things would only get worse from there. I feel bad most of the time and I have for as long as I can remember.
Just because I'm incapable of cleaning the house and doing 6 loads of laundry, doesn't mean I'm too sick to sit on my friend's couch and watch TV... It's like in her mind I have to give up everything and be sick all the time, or I'm not sick it all.
Anyone who has a chronic illness might be able to relate to this. Or anyone who just finds that life is difficult sometimes...
I was diagnosed with Crohn's disease in 2007. I displayed symptoms LONG before that, and as a child I would often sit in the bathroom floor with my head against the cold marble of the bathtub after every meal just waiting for the nausea to pass. Since my diagnosis and treatment life has been different. Sometimes it's easier, sometimes it's not. But I can never really forget that I'm living with a disease because most of my life is dictated by my symptoms. I've said this in other blog posts, but in case anyone new is reading: I have fistulizing Crohn's. I have had 2 fistulectomies to date. I am currently being treated with Cimzia. My primary symptoms (currently) are nausea, stomach cramps, joint pain, and fatigue. I am on disability because I'm physically incapable of holding a job that would accomodate my illnesses and allow me to make enough money to still cover my medical bills.
Now that we're caught up on the facts...
Sometimes my mother just CANNOT seem to understand that I'm sick. I live with my parents in a loft apartment attached to their house because I can't live alone. I (like many others with chronic illnesses) just have too many issues that I can't deal with alone, so I have to live with my parents.
Last night I went to a friend's house just to hang out. Before heading to his house I took something for pain because the intestinal cramps were getting worse. When I got there we sat around, watched youtube videos, listened to some Lonely Island, and that was pretty much it. When I came home I was feeling nauseous so I took something but I couldn't sleep. I didn't fall asleep until 6 AM, and when I did finally wake up I was still having stomach cramps. When I explained this to my mom this morning she said, "Every time you go somewhere you come back sick. You must have felt fine earlier or you wouldn't have gone. Maybe you just need to stay home."
I'm just wondering how many of you have experiences like this? You have to medicate yourself in order to function but you still don't feel great. You go out because you feel like if you don't leave the house occasionally you're going to go crazy. Feeing like crap in the company of friends is sometimes less horrible than feeling like crap in an empty room.
I just don't think she understands that if I were to always stay home when I feel bad, I would NEVER leave the house. I would probably get depressed and things would only get worse from there. I feel bad most of the time and I have for as long as I can remember.
Just because I'm incapable of cleaning the house and doing 6 loads of laundry, doesn't mean I'm too sick to sit on my friend's couch and watch TV... It's like in her mind I have to give up everything and be sick all the time, or I'm not sick it all.
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