I've got soul but I'm not a soldier...

I took my second increased dose today. The last week went well. No side effects aside from minor dehydration and fatigue the day after injection. I also get really hungry the day OF injection, so Sus and I had Waffle House for breakfast. It normally bothers my stomach but the Crohn's doesn't seem to react as much at this increased dose. If you're taking Humira make sure you hydrate the day of, and the day after injection. It's incredibly dehydrating and, for me, summer in Georgia doesn't help. My current drink of choice is unsweet tea with mint tea added to make it a bit more refreshing. Dr. Wolf's nurse called and went over my labs again today. She confirmed that Dr. Wolf wanted me to continue with 120MG per week for the next eight (8) weeks, however, she reminded me that insurance has not approved this dosage yet and she doesn't want me to run out and not have any medication left. They submitted paperwork, and for the first two doses I had enough on ha...

It seems to be working. Some of the spots have flattened out and stopped draining, others are lightening in color. I take my next dose on Thursday. Reminder: I am on Humira for Crohn's Disease, Hidradenitis Suppurativa, psoriasis, and polymyalgia rheumatica.

I took two pens on Thursday (6/29/17) and another one today (6/30/17) and I am EXHAUSTED. No idea if it's helping yet, but the shots seem to make me hungry. Reminder: I am on Humira for Crohn's Disease, Hidradenitis Suppurativa, psoriasis, and polymyalgia rheumatica.

My dermatologist and my GI agreed that because my adalim levels were low and I wasn't building a tolerance to the Humira we should try dosing at 80MG per week. That's two pens/syringes every seven days. I was worried about the increased dosage so I did a little of my own research and I spoke to a friend who is a scientist. There were no increased risks and my body was tolerating the drug well already. It seemed that a higher dosage resulted in an increased chance of remission for most people. So we did it. A whole 3 months at 80MG per week. I experienced no unusual side effects. I try to hydrate on injection days and I seem to be hungrier than usual, but my intestines seem to tolerate fiber a little bit better so I tried healthier snacks and the occasional salad. I don't know how much is the Humira and how much is the steroids but things seemed okay for quite a while. Then, a few weeks ago, I started having an HS flare. Hidradenitis suppurativa is an unpredictable dis...