Humira, Life at 120MG part 2

I took my second increased dose today. The last week went well. No side effects aside from minor dehydration and fatigue the day after injection. I also get really hungry the day OF injection, so Sus and I had Waffle House for breakfast. It normally bothers my stomach but the Crohn's doesn't seem to react as much at this increased dose. If you're taking Humira make sure you hydrate the day of, and the day after injection. It's incredibly dehydrating and, for me, summer in Georgia doesn't help. My current drink of choice is unsweet tea with mint tea added to make it a bit more refreshing.

Dr. Wolf's nurse called and went over my labs again today. She confirmed that Dr. Wolf wanted me to continue with 120MG per week for the next eight (8) weeks, however, she reminded me that insurance has not approved this dosage yet and she doesn't want me to run out and not have any medication left. They submitted paperwork, and for the first two doses I had enough on hand, but they may try to get samples to make up the difference.

I knew this would be a struggle. I know this isn't a common dosage and there's almost no method for getting three (3) pens a week approved by any insurance company, but I'm hoping against hope that they will do it temporarily. Maybe they will do it. Maybe it will work. We're two (2) doses in so we only need six (6) more to see if it really works.

Reminder: I am on Humira for Crohn's Disease, Hidradenitis Suppurativa, psoriasis, and polymyalgia rheumatica.

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Sunshine Vox Box

I got my Sunshine VoxBox a few weeks ago and it had a lot of great stuff in it! Vaseline Intensive Care Aloe Spray Sinful Colors nail polish in Ocean Side Infusium 23 Leave in Treatment with Avocado and Olive Oil Dickinson's Witch Hazel Cleaning Cloths (and some coupons) A coupon for a free bag of Bark Thins, I got the Blueberry Quinoa variety Blue Diamond Sriracha Almonds Vaseline Intensive Care Aloe Soothe Spray: The Vaseline Intensive Care Aloe Soothe spray lotion spray smells great, it's light, quick, easy to apply, and absorbs quickly without leaving any greasy residue. The smell is kind of strong but it fades quickly. Unfortunately it's not heavy enough for my super dry skin, even with the summer humidity. This would be great for people who want light moisture without getting it on their hands or leaving a greasy feeling. Sinful Colors Nail Polish in Ocean Side: I love Sinful Colors nail polish. It comes in a huge variety of ...

There was an incident...

Yesterday was shot day. Three pens, as expected, no big deal. Except one of my pens misfired. The needle didn't even touch the skin. I pressed down, counted to ten, pulled it away, and the Humira started spraying. I put my hand over the end to catch to fluid so that it didn't spray all over the carpet. According to the Humira rep with AbbVie this is a normal mechanical failure. I explained the incident, gave them some info from the package, and as soon as they confirm with my doctor a new pen will be on the way. I have extras in the fridge, so no lapse in dosing. Still, injecting is anxiety inducing enough without equipment failure. The other problem: I noticed two lumps in my right arm pit on Thursday morning. Around 9 AM it was the size of a ping pong ball. I sat in Sus' house all day while she cleaned, unable to help her because the building pain was just too much and movement would only make it worse. By dinner time it was roughly the size of a tennis ball, and more...