Skip to main content

Humira, Life at 120MG part 2

I took my second increased dose today. The last week went well. No side effects aside from minor dehydration and fatigue the day after injection. I also get really hungry the day OF injection, so Sus and I had Waffle House for breakfast. It normally bothers my stomach but the Crohn's doesn't seem to react as much at this increased dose. If you're taking Humira make sure you hydrate the day of, and the day after injection. It's incredibly dehydrating and, for me, summer in Georgia doesn't help. My current drink of choice is unsweet tea with mint tea added to make it a bit more refreshing.

Dr. Wolf's nurse called and went over my labs again today. She confirmed that Dr. Wolf wanted me to continue with 120MG per week for the next eight (8) weeks, however, she reminded me that insurance has not approved this dosage yet and she doesn't want me to run out and not have any medication left. They submitted paperwork, and for the first two doses I had enough on hand, but they may try to get samples to make up the difference. 

I  knew this would be a struggle. I know this isn't a common dosage and there's almost no method for getting three (3) pens a week approved by any insurance company, but I'm hoping against hope that they will do it temporarily. Maybe they will do it. Maybe it will work. We're two (2) doses in so we only need six (6) more to see if it really works.



Reminder: I am on Humira for Crohn's Disease, Hidradenitis Suppurativa, psoriasis, and polymyalgia rheumatica.

Labels

Labels:

Comments

Post a Comment

Popular posts from this blog

Two in one day!

So I thought I had finished my blogging for the day, but I was wrong. I need to take a moment to complain... Anyone who has a chronic illness might be able to relate to this. Or anyone who just finds that life is difficult sometimes... I was diagnosed with Crohn's disease in 2007. I displayed symptoms LONG before that, and as a child I would often sit in the bathroom floor with my head against the cold marble of the bathtub after every meal just waiting for the nausea to pass. Since my diagnosis and treatment life has been different. Sometimes it's easier, sometimes it's not. But I can never really forget that I'm living with a disease because most of my life is dictated by my symptoms. I've said this in other blog posts, but in case anyone new is reading: I have fistulizing Crohn's. I have had 2 fistulectomies to date. I am currently being treated with Cimzia. My primary symptoms (currently) are nausea, stomach cramps, joint pain, and fatigue. I am on disab...
Post a Comment
Read more

There was an incident...

Yesterday was shot day. Three pens, as expected, no big deal. Except one of my pens misfired. The needle didn't even touch the skin. I pressed down, counted to ten, pulled it away, and the Humira started spraying. I put my hand over the end to catch to fluid so that it didn't spray all over the carpet. According to the Humira rep with AbbVie this is a normal mechanical failure. I explained the incident, gave them some info from the package, and as soon as they confirm with my doctor a new pen will be on the way. I have extras in the fridge, so no lapse in dosing. Still, injecting is anxiety inducing enough without equipment failure. The other problem: I noticed two lumps in my right arm pit on Thursday morning. Around 9 AM it was the size of a ping pong ball. I sat in Sus' house all day while she cleaned, unable to help her because the building pain was just too much and movement would only make it worse. By dinner time it was roughly the size of a tennis ball, and more...
Post a Comment
Read more

Clairol Hair Food and ELF Skincare

I pocked these up at Target because I had some Cartwheel coupons. After a few weeks of use I can say the shampoo is fantastic. It leaves your hair clean without weighing it down. Unfortunately the conditioner isn't heavy enough for damaged or color treated hair so I usually have to use a leave in conditioner spray after. The shampoo and conditioner together do work well to clarify if used intermittently between other shampoos. They also smell fantastic and I do use them whenever my hair feels heavy from product buildup.  The ELF skincare is great for the price point. I'm not sure if it's scented but if it is the smell isn't strong. I loved the serum and used it up quickly. The eye cream and face cream work well but it wasn't hydrating enough for me. It might work better for someone with combination or oily skin.  The ELF beauty blender is excellent. I've used it many times and I love it. It works incredibly well and is much cheaper than the n...
Post a Comment
Read more