Skip to main content

Brief Update

I've got a few new diagnoses on top of the others but we're working through it.

Crohn's disease, hidradenitis suppurativa, migraines, psoriasis, and polymalgia rheumatica.

I'm on a 60 day taper of steroids and an experimental dosage of Humira at 80mg per week.

Will update later.

Comments

Popular posts from this blog

There was an incident...

Yesterday was shot day. Three pens, as expected, no big deal. Except one of my pens misfired. The needle didn't even touch the skin. I pressed down, counted to ten, pulled it away, and the Humira started spraying. I put my hand over the end to catch to fluid so that it didn't spray all over the carpet. According to the Humira rep with AbbVie this is a normal mechanical failure. I explained the incident, gave them some info from the package, and as soon as they confirm with my doctor a new pen will be on the way. I have extras in the fridge, so no lapse in dosing. Still, injecting is anxiety inducing enough without equipment failure. The other problem: I noticed two lumps in my right arm pit on Thursday morning. Around 9 AM it was the size of a ping pong ball. I sat in Sus' house all day while she cleaned, unable to help her because the building pain was just too much and movement would only make it worse. By dinner time it was roughly the size of a tennis ball, and more...

I don't take gym selfies...

The dermatologist said that sweating might help with the flares. Not losing weight necessarily, just being more active. For the first week I did 30 minutes on the treadmill, five times that week. I did it. I took my ass down stairs and did my treadmill time. I sometimes crashed afterward, but I did it. I bought new sports bras. I run to get my heart rate up then walk for a while, alternating as needed. I couldn't run with my old shitty sports bras. I bought the sports bras. Then there was a holiday weekend and a funeral and I didn't walk. And now I have hard spots in one arm pit and my stomach is raging. I did 20 minutes this morning. It was slow, I had to take a break, but it was 20 minutes. Now my stomach hurts and it's not getting better. But I did it. And I will try again tomorrow.

Clairol Hair Food and ELF Skincare

I pocked these up at Target because I had some Cartwheel coupons. After a few weeks of use I can say the shampoo is fantastic. It leaves your hair clean without weighing it down. Unfortunately the conditioner isn't heavy enough for damaged or color treated hair so I usually have to use a leave in conditioner spray after. The shampoo and conditioner together do work well to clarify if used intermittently between other shampoos. They also smell fantastic and I do use them whenever my hair feels heavy from product buildup.  The ELF skincare is great for the price point. I'm not sure if it's scented but if it is the smell isn't strong. I loved the serum and used it up quickly. The eye cream and face cream work well but it wasn't hydrating enough for me. It might work better for someone with combination or oily skin.  The ELF beauty blender is excellent. I've used it many times and I love it. It works incredibly well and is much cheaper than the n...